It has been seven years since this craziness began. Seven years ago today I was a "normal" teenager. I was playing basketball, going to school, and hanging out with friends like a normal fourteen year old. In the blink of an eye that all changed and before I knew it I was spending more time in the doctors office, hospital, and operating room than I was anywhere else. The only place I wanted to be was on the court.
Last year, at this time, I had just started my blog. I was desperate to find some peace with the whole situation. So I started writing in hopes of finding some emotional healing and I definitely did. I found a whole lot more than that too. I found other people who were touched by my words and who found them healing for themselves as well. I found a new support group. I found out that I was capable of helping my family and friends understand what I am going through. I realized that people want to hear about this illness and that more than ever we need to spread awareness about it.
I have been blessed by this situation. I know that sounds crazy, so let me explain.
I have been blessed by being able to get close to my family.
I was blessed by learning that sometimes what we think is the best for us and what is actually the best for us can be two very different things.
I was blessed by learning who I am and what I need and want.
I was blessed by meeting some incredible warriors who have been fighting forever and some who are just beginning their fight.
I was blessed that I got to become the voice for so many people that need it.
I am blessed that I learned how to become my own biggest fan and advocate.
I am blessed that I found an incredible doctor who listens to me.
I am blessed that I have gained meaningful relationships and that I have learned to let go of those who aren't willing to fight with me.
I am blessed that God chose me to fight this fight.
It has truly made me who I am.
I often get asked if I could get rid of this whole thing, would I?
My answer is, without a second thought, no. While I have lost a lot (some independence, modesty, pride, etc.) I have gained so much more. I also know that without this fight I wouldn't have learned what I am passionate about. I wouldn't have realized how much I love caring for people. I know that without this, I wouldn't know the people I know now and that I wouldn't have the life I do now.
Seven years after I said that my life was over I finally am realizing that life is only just beginning.